Sunday
Driving. 9 hours. I had a bag of Dollar Tree toys that I doled out over intervals.
We tried to stop at Multnomah Falls, but it was packed and we couldn't find a parking spot. So we continued on.
Monday
Exploring Portland. We rode the Max train, stopped at a Farmer's Market in Pioneer Square, and enjoyed Stumptown Coffee. Then, we had the pre-op doctor's appointment.
Tuesday
Surgery day. Check in was 6am, so we all had to be up and at-em at 5:30.
We loved the Ronald McDonald House! Along with being a fairly ordinary hotel, it had play rooms and video games for the kids, a well-stocked kitchen where volunteers cooked meals on several nights, and a lovely back deck and play yard.
Our room, though, was a bit small for six of us. We made Curly a bed in the closet, and lined the other three up on the futon bed, like sardines in a row.
During the surgery, the other kids played in the waiting room, or out on the adjoining patio, with a lovely view of the tram and the city below. Other kids waiting for the same reason enjoyed playing together.
Surgery went well. As I wrote on Facebook that night:
Well, that was almost anti-climactic. The doctors got her sedated and decided that her bad eye was too far gone, and that further procedures would only damage it more. There is definitely no sight in it at all. They looked at the good eye too and we are discussing options for that one. (The prime one being "do nothing" as it is already so fragile and damaged. Then possible laser treatment in the future to stabilize the pressure.) The whole thing ended up being only an exam under anesthesia, so no recovery time or pain. Abi woke up great and no vomiting this time! Yay!
I'm still happy we came. We have a second opinion from one of the premier glaucoma doctors, we have an answer on the bad eye, and we had a lot of wonderful support and advice from some really top-notch eye specialists.
Now, I can relax and stop fretting about this surgery being scary and painful for her. Wheeeeeeeewwwwww. :)
This hot dog vendor tweeted about us after he'd sold us a dog. I've never been the subject of a hot dog vendor's tweet before!
Wednesday
The "zoom." We got our post-op doctor's appointment out of the way early and headed to the Zoo, which Abi insisted on calling the "zoom."
The sea lion played with the kids, swimming close enough even Abi could see him!
We bought the kids snow cones; it was really hot!
Abi couldn't see the elephant, but I took a picture of him and showed her the picture on my camera's screen. All of us could smell him!
People wonder how a blind kid can enjoy the zoo. In reply to friends asking on Facebook how Abi liked it:
She LOVED it! Part of it was sharing the excitement from the other kids. But every exhibit had a recording or a tactile statue or skull or drum or something she could appreciate. And the sea lion tank, the sea lion was playing with the kids and swam by close enough that she could see him over and over. It was amazing!
The aviary full of bird songs was a favorite too. We kept her out of the Africa section (ironically) because we were afraid that the ethnic music and the recorded lion roars would make her feel scared or homesick.
Thursday
OMSI. Although we'd been planning a visit to the OMSI all week, by the time it came, we were all so tired and overwhelmed, I don't think any of us really enjoyed it that much. The kids were whiny and crabby. Still, it's a cool facility with a lot to do.
Bean enjoyed the water tables, so much so that he soaked his clothes despite the waterproof apron. For the next two hours, he shivered and his poor little teeth chattered. At one point I took him in front of a thermal camera, and his cold hands registered darkest blue instead of the bright orange and yellow that mine were. Eventually, he dried off and thawed out, but that was the end of his water play for the day.
Multnomah Falls.
We got to stop at Multnomah Falls on the way east, and the kids all loved the huge waterfall.
Friday
Home Again. We drove five hours on Thursday night, then crashed in a hotel at 11pm. The next morning, we drove the remaining hours home, unpacked and rested. We were all so glad to be home. Abi, in particular, relaxed immediately. It's possible that she thought she was never coming back! But when we got here, her mood brightened immediately.
As I expected, the stress of the surgery overshadowed any play or sightseeing this trip offered. I was mostly glad to get it over and come home again. I hope we get to go over there for a more relaxed vacation some other time. Still, I'm glad to have answers and a second/third opinion on Abi's case. In that sense, it was worth it to go.